Friday, October 11, 2013

2013 Maui

October 9

Our vacation started out quite well.  We got to San Francisco from Reno, via United Airlines.  The flight was good, except for a little bit of turbulence.  We must have walked two miles from the United terminal to the International terminal for our Hawai'ian Airlines flight, but we didn't mind because we knew we'd be sitting for the next five hours.  As we boarded our plane, we were quietly gripping about having to sit in coach, even though we usually do.  We got to our seats, and were pleased to see that there were only three rows in our section.  We had seats in the back of the section, and it was so quiet  throughout the flight, ie no screaming kids, and nobody kicking our seat backs, that we felt almost as if we were in first class.  The meal was just fruit, cheese and crackers, but we had packed sandwiches, grapes, cheese, apples, potato chips and homemade brownies, so we were able to snack whenever we wanted to.
The puffy clouds were just asking to have their picture taken
The flight was smooth and went by very quickly.

We had a two hour layover in Honolulu, but we sat outside and just enjoyed the beautiful breeze.  We got to Maui at 1:30, grabbed our luggage and got over to Alamo Car Rental.  They tried to pursuade us to upgrade to a full-size car, but we declined, only to find out when we went outside that there were no midsize cars left, and we had to take a full-size car anyway. We were happy we hadn't paid for the upgrade.

We got to the condo at 2:44 and, for the first time ever, we didn't even open the suitcases except to get a pair of shorts out for Bill.  We were down at the pool for the mai tai party by 3.  Carolee joined us soon after, and Gee and Joe arrived about a half hour later, along with some new friends.
So there were 11 of us enjoying the music and the cocktails.  What a lovely way to start our vacation.

After the party, we unpacked and got everything organized.  We were tired but since we hadn't stopped at the market, we didn't have anything in the kitchen to eat, so we went over to Moose McGillicuddy's and split a hamburger.  Then we went to the closest market to get milk, bananas and a box of raisin bran for breakfast. We sat on the lanai for about five minutes when we got home, but we were both exhausted, so we went to bed at 8:00, and slept like logs.

Oct 10

I woke up at 4:15, which was really late for me, because it was 7:15 at home. I quietly got my clothes together and went for my first Maui walk.  I wandered all throughout the complex, using the parking lot and the gardens, so my GPS would work.  I walked for almost 40 minutes, and went two miles, so I was happy.  I don't want to lose miles while we are here.  I already have 25 miles for October and my goal for the month is only 70. We want to walk as much as we can, but we plan to swim more, so I set my walking goal lower.

We went to the pool for our 8:00 exercise. We beat Carolee, but she showed up within a couple of minutes.  The pool was wonderful.  We stayed until 9, and went home to have breakfast and make a shopping list.  At 10:30, we picked up Carolee and made a Costco run.  Costco in Maui is always mobbed, no matter what the time of day.  We maneuvered the cart through the store and got out and home by 12:45.  Bill and I finally relaxed for a while, reading on the lanai.  Around 2, we went upstairs to visit with Janet.  We were so glad to find out that George was out of rehab and home where he belonged.  They are going to sell their home in Boston and stay in Maui permanently.  They both love it here so much.  We stayed at their place until a little bit after 4 and then went over to Safeway to finish up the marketing. When we got home, we went for a mile walk.  Again, at the end of the day, we were too tired to read, so we went to bed at 8:45.

October 11

I was so surprised this morning when I woke up and found that it was already 6:10.  I wish I could sleep this well at home.  I didn't go for a walk because I had some training to do for the company I work for sometimes, so I sat on the lanai with the computer and got that taken care of.  Bill got up at 7:20 and came out to make coffee and read before going to the pool. Carol was there this morning, but Roy slept in, so we haven't seen him, yet.

Bill next to the windmill
Me hiding
Jackfruit
Sugar Cane Grabber
Plantation windmill
We had breakfast after our swim and then we sat and enjoyed our garden and the beautiful day.  Bill called his brother who lives in Maine.  Mike mentioned that they are having a politically incorrect Indian summer.

Bill discovered that the celery we got at Costco yesterday was icky, so we had to drive back in to Kahului to return it.  We decided to make a day of it.  After making the return, we went over to Ka'aumanu Center to walk around and through the mall.  It was very hot and sticky, though, so we didn't walk for very long.

We had a late lunch at Ruby's Diner and then drove over to the Maui Tropical Plantation. We've been there countless times, but this was the first time we took the long tour, through all the gardens.  We liked the fact that they label all the crops so you know what everything is.  When we got to the Avocado grove, I found an almost ripe avocado on the ground, and I picked it up to take home for Carolee because she mentioned, yesterday, that she adores them.                                                                                  
We drove back to the condo with about 45 minutes to spare because we had planned to do one of our favorite things, swim with sunset. We quickly got into our swimsuits and went across the street.  It felt wonderful to be in the ocean again. We swam until the sun disappeared and then we sat in our beach chairs for a half hour and just watched the people and the gorgeous sky.  We hadn't taken the phone or a camera, so we didn't get any pictures.
After that we stopped by the pool for a dip and then came back to spend the evening reading and relaxing.


Carolee is going to come over for dinner and sunset swim tomorrow night.  We'll have chicken salad.  We have fresh Kula tomatoes and a ripe pineapple to put in so that will make it very tasty. 



Cooperative longhorn bulls







October 12

Janet and George took us to Stella Blue's for breakfast.  We had such a good time visiting with them.  George and Mary like my book.  Janet didn't have a chance to see it, yet, so I will get her opinion when they come over for dinner on Monday. 

Caroee's friend, Kristy, came over this afternoon to see our condo.  She is the only realtor who lives at Kamaole Sands, and I thought she made a very good presentation.  The man Bill has been talking to will be back on island on Monday, and we'll talk to him, too.

Dinner with Carolee was easy and relaxing.  After we ate we walked.

October 14

We spent a calm Sunday.  We were the only ones at the pool for morning exercise, so we just had a leisurely workout for 45 minutes.  Then we read the Sunday paper.  I went home at 9:00 to make pancakes and scrambled eggs with pineapple and watermelon.  I took breakfast to the pool where we got a few looks of envy.

After breakfast, we did a few more small things around the condo, and at noon, we drove down to Wailea to walk around inside the shopping center, but even in there, the heat was pretty bad.  It was 86 with 59% humidity, so we only walked for a little while.  We went over to the Maui Marriot and walked through there, too.



Then we drove down Wailea Alanui but we didn't go all the way to the King's Highway, because it was too hot to walk around on the lava.  We saw an open house sign for Christie, the realtor we have been talking to, so we drove up to the luxury houses to see what she was selling.  It was a 4500 square foot house, with a commanding ocean view all the way from Pu'u'olai to the Pali lookout. The price was only 4.5 million.

We spent the rest of the afternoon being lazy.  Bill grilled a steak for dinner, and I made fried potatoes. After dinner, we drove to parking lot at the end of Keakwaikapu Beach and walked almost to the Grand Wailea on the sand, and then on the trail.  Even after the sun went down, it was still awfully hot.  When we got back, we went in the pool for an hour.  Just as we were going over to soak our feet in the hotter of the two hot tubs, Joe and Gee came in the gate so we saw them for a few minutes.

October 17

After swimming and breakfast, we took the day off and drove to Lahaina.  We looked at two multi-million dollar open houses on the slopes of the west Maui mountains on the way.  Very nice, but too far from the beach. In Lahaina, we walked a little bit, had lunch at Cool Cats and did our first Hawai'i geocache.

We always enjoy seeing the huge banyon tree on Front Street, so we went there and sat under the shade of it for a little while.  On the way home, we stopped at Leoda's in Olowalu to get two small pies.  They were luscious, but we will probably never go there again, because they were $9.00 each.  That's for a four inch pie.  It's good that they are so expensive, because we enjoyed them far too much.








We had a little visitor on the lanai.  I was reading my book, and notices a baby gecko on the arm of the chair where I was resting my feet.  Slowly, he came closer until he was on my book, then on my arm and then, finally, my hand.  I played with him while Bill took lots of pictures for over an hour before we finally had to go to bed.  I haven't seen him today, but I hope he comes back.











Time for bed little guy










October 18

Today was pretty routine, pool in the morning, and beach at sunset has become our routine.  This morning, we listed the condo today at $525,000.00.  We have some people interested already, especially the family of the people staying next door.  They live in Calgary, and have been looking for another unit to buy, one with a large lanai. They would love to have two side-by-side, so we are in preliminary talks. There names are Roy and Delores, and they are very friendly. We have started bringing them a paper every morning.


After swimming this morning, we did some more closet cleaning, and getting ready for professional photos tomorrow morning.  Bill worked on the problem of the mechanism being broken on the bedroom verticals.  We drove into Kahului to see if we could order the part he needs, but they weren't at all helpful at Lowe/s.  He had to duct tape the ends because they won't stay on.  They are only one year old, but I guess that's what you get with Lowe's. 

We went to Carolee's for Hawai'ian pizza.  It was very good.  We sat and talked for a bit, and then walked over to the beach for our sunset swim. We took homemade fruit-cicles with us for dessert.  On the way we stopped at an open house in building 2.  It is a beautifully remodeled one-bedroom on the ground floor with a small lanai for $549,000.00.  That is so good for us.  It is $24,000 more than ours and we have the large lanai.  The sunset was wonderful, and we saw the green flash for the first time this trip.  Maybe an omen of good things ahead?

October 22

So, I thought I was so clever.  I extended our trip from October 29 to November 7.  Pat and Leroy were expected on Nov 5, so I figured we'd be able to see them for a little while.  I got a mystery shop at the Hyatt Regency Maui in Kaanapali, which includes the room, breakfast, dinner and a spa visit.  We will do that on the 5th, and stay with Carolee on the 6th.  Just one problem - Pat and Leroy will be here on October 31.  So that leaves us with no place to stay for five nights.  I was so upset about the stupid mistake that I couldn't get to sleep last night.  I finally got up at 11:30 and opened the fold-out in the living room.  I watched TV until after 3:00.  I'm working on finding a place to stay.  We just don't think we should stay with Carolee for that long.

On  Saturday, we took off and went upcountry to play.  We went to the Maui Winery, checked out a few garage sales, watch the windsurfers at Hookipa, and found a few caches.  We even found one of Ennio and Sherry's caches up in Ulapalakua.
I wanted to log at least one of theirs while we were here.  We had dinner at Charlies in Paia and got back to Kihei in time to watch a perfect sunset.
Bailey texted me to ask me to get a sunset photo for her, and I think this one was really good.

On Sunday, neither of us felt like going to the pool for morning exercise, so we hung around our lanai and read for hours.  It was a good, relaxing day. We visited with Roy and Delores and talked about Maui and Kamaole Sands. They live Lethbridge, near Calgary, Canada. They are leaving in one week. It has been good to have neighbors to talk to.


On Monday, we did some more geocaching, starting at the Maui Tropical Plantation where we couldn't find the cache. We encountered a friendly native Hawai'ian.

But we did find one at Waikapu in an old, neglected cemetery, and another at a park in Wailuku Heights.  From the cemetery, there was a great view of both sides of the island and we saw there was a ship in Kahului harbor.  Later we saw that it was the Pride of America, the ship on which we enjoyed the inaugural cruise from New York to Miami in 2005.

We were lamp hunting, and after going to several thrift stores and new furniture stores, we ended up at Lowes, where we found a three piece set of lamps on clearance for $22.00.  What a find.  They fit right into our decor, so the palm tree lamps we're taking home with won't even be missed.

October 23

Today we went to Ulua and Mokapu beaches to read and enjoy the breezes.  The condo was on the Realtor's Caravan Tour, so we had to be out for three hours.  On the way home we stopped at Taco Bell to get tacos for lunch, because we had an early and sparse breakfast of cereal and banana.  In a few minutes, we're going to pick up George, Janet and Mary for dinner at Ruby Tuesday.  We haven't tried the one here, yet, but we liked it in North Carolina.

October 24

Dinner was wonderful last night.  George, Janet and Mary exclaimed all the way home that they hadn't had a steak that good in a very long time.  The salad bar is the only one we know of on the island and it was excellent.  We were so stuffed that none of us indulged in dessert.

We have a lovely place to stay.  Mary asked us to stay with her when we have to leave our place next week.  She sold herself as quiet, neat and never there.  George and Janet own the condo she is in, and they were adamant that we should stay there and they won't even think about letting us pay them for it.  We were planning on them coming for dinner on Saturday, so now we will plan for more meals together - they were excited about the prospect of homemade pizza. Carolee is sad that we won't be staying with her for even one night but we don't want to contribute to her stress level.  She hasn't been very well for the past few months.  We will be taking her to the swap meet and out to lunch on Saturday, and we will still see her after we move to Mary's place.

Today, we have no plans, yet.  We still need to find two boxes so we can send our lampshades, the pineapple lamp, and a few other things home.

October 25

This morning, we did our civic duty and attended the homeowner's meeting.  There were no interesting people there. We stayed  for almost two hours before sneaking out due to shear boredom.

I took Carollee over to Kalama Heights for a tour.  Kalama Heights has independent living for retired seniors, and, though it isn't as nice as Cascades, where Bill's dad lived, it was still quite a nice place.  Carolee was surprised at all the activities, but she wasn't very excited about the rooms, and having to give up her condo and her life here at Kamaole Sands.  We had lunch in the dining room, and neither of us thought the food was wonderful.  Still, it is an option for her when she can no longer live alone.  She has been having regular seizures and we're afraid it is only a matter of time until she falls and hurts herself when she passes out.

On the way home, we drove by the airplane that landed on the Pi'ilani Highway a few nights ago.

I posted on Facebook that something always happens when we're on Maui.  Analise, who lives in Honolulu, replied that I forgot about the two shark attacks that have occurred off the coast of Maui in the last few days.

We drove to Kahului yesterday and bought the boxes we needed.  We got them packed up this morning, and Bill has already taken them to the post office to send them home. 

October 26

This morning, I mentioned to Carolee that she should get a service dog.  Boy did I open a can of worms.  The easiest thing will be for me to post the letter that I wrote to the board of directors here.



We are writing this in behalf of Carolee Dennett, of 5-409.  You may know that she has been having health problems for several months which includes seizures in which she loses consciousness, and we are concerned about her safety.  We have encouraged her to seek solutions to living alone, but she adores living at Kamaole Sands, and she is presently refusing to give up her independence.  We have checked with health care professionals, who have explained a good option for her would be to have a service dog that would be able to alert her when a seizure is imminent.  

Because animals are not allowed at Kamaole Sands, Carolee is under the impression that she would not be allowed to have a service dog live with her, however the Americans with Disabilities Act defines a service animal as “any animal that is individually trained to do work or person tasks for the benefit of a person with a disability.”   Service animals are not considered to be pets.  A person with a disability uses a service animal as an auxiliary aid – similar to the use of a cane, crutches or wheelchair.  For this reason, fair housing laws require that housing providers make modifications to “No Pet” policies to permit the use of a service animal by an individual with a disability.  Also, pet fees cannot be charged for service animals.

Landlords and property managers must review all requests a disabled tenant makes for reasonable accommodations, including requests for their service animal.  You can require the tenant to provide written verification from the tenant’s healthcare or mental health provider that the tenant has a disability and needs the service animal.  The provider need not be an M.D., but does need to be a healthcare professional.  You can require proof that the tenant is disabled, but cannot require the tenant to provide information about the specific disability.  

Carolee understands that she must be a responsible owner, and care for her service dog, including proper disposal of waste and keeping the animal under her direct control at all times.  Also the animal must be well behaved, including not jumping on people, biting, acting aggressive, or barking.  You may require that the service animal is in good health, free of internal and external parasites.
We wanted to let you know Carolee that will be contacting the board about this in the near future.  When you discuss this matter, please remember that part of Carolee’s symptoms are stress related.  We know that you will treat Carolee with the utmost respect and consideration.

Sincerely,

Bill and Billie Garrow

So, then I did a lot of research online about getting a service dog, and I wrote a letter from Carolee to the board, which I have sent to her and her daughter for their approval.

While we were at Jarret's office, what started out to be a five minute visit turned into almost two hours of talking story.  He told us all about his life.  He is a fascinating man to listen to.  He is a native Hawai'ian, having gtown up in Hana, on the other side of Maui.  His family wanted him to be a priest, but he wanted to be a businessman.  But, several years ago, he became a Kumu, or teacher of ukulele, and he is teaching the Hawai'ian language to the new generations through his music.  We have always liked him so much, and it was extremely interesting to hear his stories about his ohana.
He has several ukulele videos on youtube.  If you search for ukulele, several of them are available and he doesn't make any money teaching.  He just does it for the love of Hawai'i. 

October 27

This makes me mad and there is nothing I can do about it.  I posted all about our adventures yesterday, and everything is gone, so now I have to try to remember it all so I can post it again.

We took Carolee to the swap meet at 7:30 and by 10:00, we were all pooped. We decided we needed to have an early lunch and lots of drinks, so we went to Ruby's Diner for bacon, eggs and french toast.  We all gulped down buckets of water and enjoyed our meal in that nice, air-conditioned restaurant.  We drove up to Iao Valley just for the drive, because it was too muggy to do any walking up a mountain.  We had to stop at Heritage Park for a while, because it is something we do every time we're on the island.  We took a few photos at Dr. Sun Yat Sen's monument.  Several days ago, we were in his park upcountry in Ulupalakua so it was interesting to see the different kind of tribute to him.





We got home close to 1:00 and spent the rest of the afternoon trying to stay cool on the lanai with our books. Bill grilled hamburgers for dinner and we went to the beach to swim at sunset.  It was a wonderful way to cool off.

This morning, we left here at 7:30 to drive over to Kamaole Beach 2, which is about two blocks away.  We would normally have walked there, but my foot is still bothering me.  I was very glad, because just walking from the car to our spot was very difficult.  I haven't loaded the pics to the computer, yet, but when I do, I'll include them here,

We came home to prepare dinner for tonight.  George, Janet, Mary, Carolee, Carol and Roy were invited.  Mary called to say she had a bronchial infection so they weren't able to come.  We had a very nice, relaxing time and dinner was a great success.  They couldn't say enough about my apple pie,  and they all enjoyed the pasta dinner, too. We were pleased to find out that Carolee has been doing some research into getting a service dog and she has found a place that trains dogs in Makawao, here on Maui.  They don't train seizure dogs, but they might be able to help her with the next step. They stayed for three hours but, because they came over at 4:30, we were still able to enjoy the beautiful evening from our lanai after they went home.  We read until after 10, which is unusual for us, but we knew the bedroom would be too hot to go to sleep.

 October 28

Air Transport manager Randall Jarman loosened wing bolts on a Mokulele Airlines plane Saturday morning. Jarman and another worker from Phoenix made quick work of dismantling the aircraft's wings and tail, stacking all removed parts onto a nearby flatbed trailer. The plane is scheduled to be loaded onto a trailer and transported to Kahului Airport this morning. Pilots of the aircraft made an emergency landing on nearby Piilani Highway on Monday after experiencing engine trouble on a flight from Kahului Airport to Kamuela on the Big Island. Eight passengers and two pilots were uninjured.




Bill was going to go over to take George to physical therapy this morning after our swim, but Janet said that Mary really wanted to do it. She usually uses the equipment while George does, so she likes to go with him. 

The trade winds are back and it is a wonderful relief.  We've gotten the condo cleaned and we're pretty much packed and ready to move in with Mary on Thursday.  I wrote to Pat and found out that they won't be here until after 10:00, so we'll be able to spend all day here, and go to Mary's in the late evening.

We went to see what the new Andaz Resort is like and found it to be rather stark, but beautiful.  They used a lot of wood throughout.  The lobby and beach overlook areas have a lot of comfortable furniture for just sitting in the lovely breeze.
Three endless pools cascading into a large pool at the bottom
Every staff member we came within 10 feet of greeted us and were so genuine that we felt as if we were treasured friends. At the restaurant, we were even invited to open the wine cabinets or step over to the open grill and talk to the chef.  If we wanted to know about any of the menu offerings, or the wine list. 



They also arranged a gorgeous sunset for us, which we took full advantage of. 


October 30

We're all packed and ready to move over to Mary's condo.  We've started taking food over, and we'll do the rest tomorrow morning, so we can clean for Pat and Leroy's arrival.  Yesterday, we went to Kahului to exchange the rental car, and we did a few errands, including finding the birthday present we wanted to get for Bryanna.  We are concerned about not being able to find the things we've been looking for to send to Carson and Brendan.  We did some geocaching in Kahului and upper Wailuku and drove home along the beach road, stopping at the beach boardwalk at Kealea Ponds.  The phone was dead, though, so we couldn't track our walk.  My foot is almost back to normal, so I want to try to do a lot of walking in the next week.

We have seen Joe and Gee a few times but neither of them has been feeling very well, and they are also dealing with a very stressful situation with the flood in their building 10 unit.  We miss hanging out on the lanai with them.

November 1

We moved to Mary's place yesterday. 

Cleaning and getting the last of our things out of the condo was hot work.  We were finished by 4:00, and it took so long because we took a lot of breaks to sit on the lanai to read and drink iced tea.  We enjoyed sitting on the lanai to read but when it got dark, the light wasn't enough, so we brought a lamp out from inside. That worked just fine.  After Mary got home from George and Janet's, we talked and read but I was so tired that I headed off to bed at 8:30.  I didn't have a very good sleep, though.  It's always hard to sleep in a different bed.  I think I'll be fine tonight.  This morning was a beautiful morning as usual.  We went swimming for an hour and then got cleaned up for our breakfast out with Carolee.  She took us to the 808 Bistro, behind Moose McGillicudy.  We weren't expecting such a lovely little place but it was tucked into a beautiful, lush corner with a little bit of an ocean view across the street. We all enjoyed our meals.  We had banana bread French toast, scrambled eggs and bacon.

Today was Bill's testosterone shot day.  Since we extended our stay, we didn't have a syringe or needle, so we went over to Long's Drug with his prescription bottle.  They told him they wouldn't sell him the things he needed without a prescription per Hawai;i state law.  I called Dr. Minor's office and Fred was incredulous. He said he would see what he could do, but if he wasn't able to get them to sell to us, we could go to any urgent care or ER for help.  He called Long's and got them to agree to sell Bill the needle and syringe.  When we went back to the pharmacy, we saw the pharmacist set them up on the counter between her area and the front area.  The clerk told Bill they would have it ready in a while and would call him.  After 20 minutes, I went to the window to ask what was taking so long since the needle was up on the shelf.  She said, "Where?"  I pointed to it, and she went to look, found it, and returned, saying that she didn't know it was there.  She told Bill that his insurance probably wouldn't cover the cost and Bill said that was fine.  She rang it up and it was 18 cents.  We have half a mind to submit it to the insurance company for reimbursement.

We finally got home, and I had a very hard time getting the medicine to go into the syringe.  It is always hard, because the stuff is really thick, but I couldn't even get it started.  Bill did it.  I started injecting it, and found that it was leaking out of the syringe and running down his arm.  Based on how much ran out, we think he got about one quarter of it.  We were angry that we got a defective needle, and concerned that he didn't have enough medicine, so we drove to Maui Memorial, expecting another runaround.  Quite the contrary.  The nurse at the hospital said to Bill, after he explained the problem, "You had to come to the hospital to get a shot?"  "They wouldn't sell you a syringe without a prescription, even though you have the prescription for the medication?"  She then reached into a drawer and gave Bill ten needles.  We were out of there in under five minutes. 

We drove to Airport Road to find a quick cache at an old WWll bunker,


then to Sprecklesville for a neat hike in a forest and along Baldwin Beach.  It even rained a little bit while we were hiking.  We found an old rusty car that must have been there for quite a while.


We stopped at the little beach park just outside of Paia to look for the cache we couldn't find several days ago. There were two young men hanging around their truck when we parked.  We were looking around some rocks.  I was out of sight on the other side of the rocks and Bill was bent over a large boulder, trying to look under it, when one of the guys at the truck called out, "Hey man, are you okay?"  Bill wasn't able to hear him very well, but he know that the guy was talking to him, so he thought they had figured out what we were doing.  He walked over towards them, and the guy asked, again, if Bill was okay.  Seeing Bill bent over the boulder, they thought he was having a heart attack. He said he was trained in CPR, and he wasn't going to let that happen on his watch.  I had wandered over by that time, and heard what they were saying. We explained exactly what we were doing and they were very interested.  I showed them my phone with the cache description.  They said they are going to go to geocaching.com to check it out.  We thanked them for their concern, and went back to the search, but, again, we weren't able to find the cache.

Next, we found five caches at Puunene

and one at the humane society.  When Bill pulled over at the first Puunene cache, he saw a rainbow behind us, and he got a good picture in the rear view mirror.



We came back to Mary's for a quick shower and went out to look for a hot dog for Bill and a pulled pork sandwich for me.  We couldn't find a good place for those things, but we ended up at Dog and Duck Pub, and had delicious Mahi Mahi on a bed of rice with mango salsa and shephard's pit, which wasn't very good, but we had a good time.  We brought cookies home for Mary. Talked, looked at photos and watched a little TV.

In the news today - a gunman killed a TSA officer at LAX and the whole airport was shut down for several hours, causing problems all over the country.  There was another shark attack on the north shore, but the man who was bitten was able to get himself to shore and was safe.

November 3

This is what Bailey wrote to Bryanna on Instagram for Bryanna's 15th birthday.  I think they are both incredible young ladies.

 _bailey_brownThis is Bryanna Nichole Brown, the most amazing sister ever. I wanted to be the first to wish her a happy birthday but I fell asleep I know I'm not the sister she wants, but I'm the only one shell get. She's beautiful, amazing, funny, and much, much more. I love her so much, she's one of my role models, I learn from all of her mistakes Today she's the big 1⃣5⃣ I can't wait to make you drive me around every where I can't wait till we go on yogurt beach dates I love you so much Bry You know that I'm always here for you, and I know you'll do the same for me. We've got each others backs and your my best friend when no one else is there for me. I love oh so much, happy birthday Bry Everybody wish my beautiful, perfect sister a happy birthday





November 6

Today was our last day on Maui.  It has been bitter-sweet, knowing that this may be the last time here as owners of our own piece of Maui.  We spent the last evening with Carolee at her place, having homemade Hawai'ian pizza.

Yesterday, we did a resort mystery shop. Most aspects of the service were impeccable.  We now know how the other half lives.  I loved my Happy Feet massage, and would like to have one every week for the rest of my life.

The food was fantastic but who in their right mind would pay $65.00 for two pancakes, two eggs, three pieces of bacon, a fruit plate with yogurt, and two cups of coffee?  Crazy.



November 7, 2013

We are on the plane on our way home. We have had a good time in Maui with little trauma this time, which made the trip all the better.  After our mystery shop at the Hyatt, yesterday and the day before, we got back to Kam Sands by noon.  I started the crust for the pizza that we were planning to take to Carolee’s place for our last dinner.  Then I sat at the table and worked on the report so I could get it submitted before going to the mai tai party. Bill went down to secure good places for us to sit and I kept on working.  It took quite some time to finish, but finally, I was satisfied with it and I sent it in.
I went down to join Bill and found that nobody else was there, yet. I looked at Bill’s foot to find that his big toe was bloody and swollen. He had tripped after going in the pool gate and scraped it on the deck.  He went over to the rest room to wash it off and we put some ice on it.  The music started and we enjoyed it, as always.  I spoke to Jarett who told me that the ukulele concert series would be starting for the winter, so we were really glad we were there for that.  Several of the ukulele group got up to dance hula and the songs they played were wonderful.

Tony and Margaret came over to sit with us for about an hour.  Pat, our friend who is staying in our condo, came to the pool to join us, and we were honored, because she had told me that she and Leroy never go to the pool, even on mai tai day, because they prefer to listen to the music from our lanai.  She said the people talk through the music, making too much noise.  After a few of the songs, she said she was very glad she had joined us, and she had really enjoyed watching the hula dancers.
She saw Bill’s toe, which, by that time had turned completely purple.  She was very concerned, and she insisted that we go up to our place so she could do some first aid on it, because she knew we didn’t have any supplies at Mary’s place.  We waited until the 5:00, when the party was over, and went up with Pat.  She bathed Bill’s foot and washed the area with soap and a soft cloth.  Then she put some tee tree oil medication on it.  It was very good of her to do that for him.
We left her and Leroy for the third time, and started walking over to Carolee’s.  Gee phoned to say that they had missed the mai tai party due to a dead battery, and being stuck and towed.  We were so sorry we weren’t able to see them more while we were there this time.  With Joe’s back and their condo flood, they had such a lot going on. 

At Carolee’s, we cooked the pizza, which didn’t turn out very well.  It was mushy, probably due to the water content in the sauce, but it tasted wonderful. We had a lot left, which we wrapped up and left for Mary, Janet and George.  After a sunset, that was beautiful, but not spectacular, we started the movie, Identity Theft.  Bill and I got into it right away, but Carolee didn’t like it, so after about a half hour, we turned it off and went to the pool for a swim. We thought the cool water would feel good to Bill’s toe.  We got home about 8:30 and watched TV with Mary for an hour.

This morning, I found that the editor for the shopping company had several questions about the shop that needed answered, so I was stuck on the computer for an hour, but, at least, we were packed and ready to go.  Bill went to the pool to visit with our friends, and I finished answering the questions and went down at 8:45, so I didn’t go into the pool.  I missed the swim, but I didn’t feel like enduring the cool water.  The pool always cools off in the late fall and by winter, it is really cold, compared to what it’s like in the summer.  We said good-bye to everyone and went up to have breakfast, shower and put on real clothes.  We left at 10 to head for the airport, so we could drive on the beach road, and also, to give ourselves enough time in case there is a problem on the road.  We went to Costco for gas, dropped off the car, and got to the airport by 11.  Our tickets were flagged for Security pre-check so we didn’t have to remove our shoes or belts, and the computer didn’t have to be taken out of the carry-on bag.  We don’t know why we were flagged, but we were glad.  We got into a special line instead of having to wait with 40 other people in the regular line.  What a great way to start the trip.
The flight was good.  About two hours into it, someone needed medical assistance, and oxygen was administered, but we didn’t find out anything else about it.
Susie and Kurt will be picking us up at the airport.  The next few days will be busy, because we will be unpacking and trying to find places to put all the things we cleaned out of the condo.  Then we will be going to the Chase ATMs to service them.  We have eleven of them to do in the next two weeks, which isn’t a lot, as long as the weather cooperates.  Bill has scans next week, and then we will be going to San Francisco to see Dr. Minor in a couple of weeks
.
We got a nice surprise as we exited the plane in San Jose, California  A group of paramedics had gone onto the plane to remove the lady who was sick.  Then they let the rest of us get off.  Just as we had started going toward our next gate, a nice looking young paramedic left the group of EMTs who were clustered around the lady's gurney.  He looked right at us and said, "Bill, Billie?"  We had no idea who he was.  It turned out that he was our son, Tony's friend, Forrest.  Tony hung with him all through high school, but we hadn't seen him since he moved away, probably 25 years ago.  We only had a couple of minutes to talk, since he was on duty, but it was wonderful to see how well he had turned out.  It seems funny to see our kid’s kooky friend all grown up.

Bill’s toe is feeling a lot better, but he now has three toes that are a lovely shade of purple.

We made it.  As wonderful as it was to be there, it was really good to get into our house and see what we have here. Our house may be small, but it is a pretty good place to be. We had a good night's sleep after unpacking and putting away some of our stuff. We got home at 12:30 and didn't get to bed until after 2.  We have the laundry all done and most of our things put away now (at 1:15 pm.)  We went to the market and picked up our doggies from Kathy's house. 

We've put all our plants back where they belong (we had put the all together in one area so it would be easier for our neighbor to water them.) I'm very pleased with the amount of work we've gotten done already.  The yard is full of leaves that I've already raked and Bill is going to help me bag them when he's done with the mail. After that, we're going to take the day off and read, then tonight, we'll start watching all the shows we recorded while we were gone.  That will take several nights, because we have four weeks of stuff, but, with the cold coming, it won't be a problem for us to stay inside and curl up under blankets. 

 






Tuesday, August 27, 2013

2009 and 2010 Stupid Cancer - Living With Melanoma - Part 1



This all began simply enough. Rommie had been after Bill to get his ear looked at for months, but this time, at Christmas, when he mentioned it, Bill touched his ear, and found a tiny lump.  Next thing we knew, we had been to three doctors, and he’d had a biopsy.  It’s never good when your doctor calls and says, “You need to come in to the office to talk.”  That was one of the longest drives of our lives.  So, February, 2009 was when we found out that our lives were changing.

2-12-2009

Last Look
I have a simple request and I didn't call you because I can't talk without getting emotional.  I am only writing to a few very special friends.  Bill is having surgery next Thursday to remove a melanoma on part of his ear and possibly part of his neck.  Please send your prayers his way.

Love, Billie

You are both in my prayers every night and now you will have honorable mention as well. With those prayers, a positive attitude and lots of love we know everything will go well. Please do not hesitate to call me any time of the day or night.
Love, Joline

We will be praying for Bill.  Let us know if there is anything you need. 
Love, Louise and Earl

Oh my dear friend....I am here for you with prayers and hugs and love.  I am praying this minute.
If Bill or you want to talk, remember that I had melanoma 9 years ago, and I am still kicking....but it is always in my mind.......It is a tough thing to hear and very emotionally draining, however, know that prayers are being said for you both.  I will call you this weekend....
love you both, Christie

I definitely will. Many, many, many people have this, my mother in law included, so please stay positive, he is a great guy with a wonderful attitude towards life and this will see him through this. My thoughts and prayers are with you both, as I know how stressful this is. Please keep us informed and thanks for letting us know. 
Love Leroy and Pat

Dear Billie:

Please call us as soon as you find out how it went, we are stunned and both of us are praying for Bill, and want to know details as soon as you can handle it. 
Love, Ennio and Sherry  

Oh, Billie, of course you and Bill will be in our prayers!  Actually, you have been in my prayers each morning anyway that your job searches would be successful!  Please keep us posted on Bill's surgery and if there is anything we can do to help.  We miss you guys!!
Love, hugs and prayers,  Donna & Rollie

Sorry to hear this.  I want you to know that you CAN call and it is absolutely OK to be emotional.  Might be just what you need to let go and not be strong as I'm sure you're doing for Bill and everyone else.  Of course we will say prayers for him.  Please feel free to call if you need or want to. 
XOXO,  Gee

Hi Billie and Bill,

Thanks for letting us know and we will definitely be including Bill in our prayers.  I hope that this is not very serious for him and that you will keep us posted.

Sorry I do not check my messages every day and am responding late.

We love you guys!  Let us know if you need anything.
Susie
Missing A Little Chunk

Before
Fast forward one year.  Just one year after the surgery, Bill found a lump behind his ear, and everything began all over again.  This time, they couldn’t save his ear.  He was now in stage three which has a 30 to 70% survival rate.









3-16-2010

Hi Susie,

After
Things are definitely looking up.  Sunday afternoon, I stopped all the drugs except for regular Tylenol.  Yesterday, the doctor said that was the right thing to do, because he had such a bad reaction - probably due to the combination of Xanax, Lunestra, and Percocet.  He prescribed Tramadol for the pain, and we're alternating between that and Tylenol every four hours. After we got home from the doctor, Bill rested, finally ate something and was able to focus on a little TV.  It was wonderful to have him back, 'cause it wasn't Bill that was occupying his body from Saturday at noon to Sunday night. Today, he is joking and acting completely normal.  The only complaint he had about last night is that his brain is on overdrive, and when he falls asleep, he has weird dreams.  

They took 34 lymph nodes, all of which were negative (insert BIG CHEER here.)  He had 58 staples but she took a few of them out.  She removed the packing on his un-ear, and it really doesn't look too bad.  There is an ear shaped depression, where his new snap-on ear will fit nicely.  The only cancer was on the back of his ear so it's good the ear went bye bye.  They said they got it all (didn't they say that last time?)  I saw all the path reports - PET scan, CAT scan, MRI and biopsies.  I believe they really did.  We're going to San Francisco to a melanoma clinic tomorrow for two consultations to find out what they recommend.  His doctors here all agree that chemo would be an unnecessary trauma for him, because there is no cancer in there to kill.   

I'm doing great now, just a little tired, because it's kind of like having a new baby in the house - every time he moves or breathes differently in bed, I wake up.  I can take a little tiredness.  We're looking forward to tomorrow.  After the clinic, we'll drive back to Sacramento and stay overnight with friends, with whom we always have a lot of fun.  It will be a good break from what we've been going though.

Thank you so much for caring. He is ready for visitors whenever you want to come over. I have a couple of pictures I can send you.

Love to you both,
Billie

3-17-2010

Gee
In a message dated 3/17/2010 6:06:01 P.M. Pacific Daylight Time, mauiboss@aol.com writes:
Ready for my rant?
Not Having a Great Day
We had a looonnggg night last night.  He feels yucky but isn't in pain.  He thinks I'm trying to poison him, planning to leave him and he hasn't let me out of his sight except when I said I was going to the bathroom.  I finally persuaded him to take a sleeping pill about two hours ago and go to bed.  He has called me on the intercom on the phone five times, three of them to find out what I'm doing, so neither of us is really getting any rest. But, at least I can make a sound without him jumping and asking what that was.  Can't wait until we go to the doctor tomorrow to see if he can get some other meds.  I can't imagine why people use drugs like Percocet and Vicodin recreationally if this is what they do to them.

On a lighter note, he isn't eating either, and I'm not hungry, so maybe we'll be svelte by Wednesday.

Love,
Billie


 4-6-10
Fitting For an Ear Cover

We went to see Travis Humphries, a friend of Kathy's and the son of our eye doctor.  He does prosthetics, and he wanted to see if he could fit Bill with something that would cover the ear area.   He did make something, but it didn't work out.  He didn't charge us anything, so we figured it was worth a try.


4-15-2010

Zokay!

Actually, it was a partly good and partly bad day.  When he felt good, he was totally himself.  He came up with a new joke.  He said I was nibbling on his ear, and he warned me not to get carried away like I did with the other one.

Bill has had a major headache that comes and goes, so we were up at 1:00 this morning.  He's already gone to bed with his new narcotic, and I hope it does something for him.  When the headache is there, he is mopey and disagreeable. 

It's Not So Bad
Tomorrow is the last day of the first week of his chemo.  Yay!!

We are looking forward to the weekend. 

How is Maui?  Duh, wasn't that a dumb question?  Maui is wonderful.  Wish we were there.  Write when you can and tell me who's there and what's happening around fantasy resort.  I want to know how the pu'u pu'u party goes and who goes to it.

Love you,
Billie

4-20-2010

Bill is having a dreadful time - headache since last Tuesday, so weak that he has trouble walking from the house to the car, disoriented, chills, nausea, depression, insomnia, no appetite, terrible dreams.  Chemo really sucks.  He said, on Saturday, that he feels like he is in a deep pit, and can't climb out.  He sees no end to this. It's worse than having a baby.  At least when you put one of those down for the night, they sleep for more than 20 minutes at a time, and they don't get up, stumble out to where you are, and scare you half to death, just because they had a dream about flying remote controls.

We were hoping that he'd have only a couple of the possible side effects.  Instead he seems to have all of them.

Okay, that is my rant for the week.

I know you'll have so much fun, so have fun for us, too.

Love,
Billie

June, 2010

He Gets So Exhausted
Bill was asked to take part in a Melanoma Study.  They said it will help other people who need encouragement.  He's doing it, but I wish someone would give him some encouragement.






June 30, 2010
Cruising Along
Just Being Silly

We had a wonderful time on the cruise to Mexico with Bryanna and Bailey, and the drive to Las Vegas to stay with Rollie and Donna. We hope to take them on another cruise after when Bill is done with the treatments.

Bill was dragging the whole time, but he did such a great job of hiding it.  He had fun but would have had more fun if he hadn't had to have his shots which wipe him out.  

I did all the driving, but that gave him more opportunity to be silly with the girls on the trip.









7-27-2010
Did Bill tell you about the problem with getting his new ear?  His surgeon arranged for him to go to an oral surgeon to do the attachment, but our insurance won't cover it because they say it is a dental procedure.  They don't seem to understand that his ear is not in his mouth.  Everything is on hold until we can get some answers.
This is a late start day, so I had just a little time to write to you.  Sorry I have to go now, to get ready to go to work. 

Love to all,
Billie

9-18-2010

Subject: Wow-didn't know anything was wrong
Just finally checked e-mails and face book and saw the video on Bill.  When did this happen?  I can't believe you guys have to deal with another situation....I hope that you find answers soon and that his condition gets back to normal right away.

Hope you had a fun time with Tony when he was here.  Did you go see the bats?

Talk to you soon and sending my best wishes,
Susie

Susie,
We enjoyed Tony and Anais' visit so much.  We did take them to see the bats.  Kathy and Rommie took them to Sand Harbor for some old fashioned crawdad hunting and playing on the rocks.  Bill didn't feel up to even a partial day on the beach, so we didn't go.  During their visit, he started to go downhill, as far as how he felt physically as well as his attitude, so the four of us visited his oncologist (we sure do know how to show people a good time!)  He couldn't even sit in the office, had to lie on the table.  She gave him a week of vacation from chemo, from Tuesday, Sept 7th to Wednesday, Sept 15.  She also gave him a steroid to perk him up.  He took it and within one hour, he felt almost normal.  That's the night we went to Mi Casa, so it was really fun.  He even had two sips of Anais' margarita (with doctor permission!!)  

He had such a good week, feeling better every day.  He had a brain scan on the 9th, just to rule out brain involvement. We saw the doctor on the 13th, and he said the scan was perfect.  He told us to start the chemo again, but to go back to half-doses for two weeks.  On Tuesday, he started to have trouble with his tongue feeling thick.  It would come on and then go away a few minutes later.  We thought it might be side effects from the steroid.  He had his first shot on Wednesday night. Thursday, he had paralysis on the right side of his face, so we spent the day at various doctors, and then went to St. Marys for another brain scan, because they thought it could be a stroke.  He is having trouble swallowing, and talking.  Brain scan was normal. Yesterday, we went to two doctors.  They now think it is Bell's Palsy, which can come on for no reason, and can go away spontaneously.  He is on a different steroid, and eating a special diet of foods that are easy to swallow.  That's the physical part.  The mental part is that he is quick to fall apart, and he gets upset with me when  I try to anticipate what he is saying so he won't have to finish his sentences, since it is so hard for him to talk. I'm trying not to do that.  I wish we could just have someone throw some fairy dust on us, that would let us sleep for the next seven months.  

Stop and Smell the Roses



Sorry I didn't call you.  I got chastised by Tony because he found out the same way you did.  Bill's idea in posting the video was to let people who are following our adventures, know that he is having a problem, but that he is okay.  I'm just so tired, and I'm trying to do all the jobs on top of all of this.  When I'm not dealing with him, I am either sleeping or watching TV.  I'll let you know if we find anything else out.

Love,
Billie  

Thank you for the update.  I am so sorry that you both are having to deal with this now and that you are so tired...and Bill can't talk well.  You are in our thoughts and prayers daily.  Please keep us posted.  We will be leaving for our California vacation on 10-2 and back in town on the 12th.  We will both have our cell phones with us and can even text now so feel free to call or e-mail.

We are going out tonight for Danielle's birthday and babysat last night for them.  Work has been really busy this week and I am beat too but other than that all is well over here.

Take care the best you can and keep the faith.   This too shall pass.

Love,
Susie

9-24-2010

Bill has been in the hospital since Monday, with breathing difficulty, which they've attributed partly to anxiety.  He has BelI's Palsy, which has partially paralyzed the right side of his face, making it hard to swallow, so he is drinking thick liquids and eating pudding consistency foods, which are easier to swallow.  They've been doing extensive testing and have found melanoma on his liver, and probably on his kidney.  We don't have a prognosis, yet.  Of course, we are hoping for surgery, chemo and radiation to take it all away, but we just don't know.  We'll see the oncologist, tomorrow, I hope, and find out as much as we can to pass along.  Sorry I didn't call, but you wouldn't be able to understand what I'm saying, so I chose this way to tell you. I'm numb. We love you and know that you are sending up constant prayers for us.




9-29-2010

Aloha Bill and Billie:

Jarret has Bell's Palsy too which affects his whole side at times as well as his face. He attributed it to a herpes cold sore virus. Thank goodness it goes away!

We will keep Bill in our prayers, and in fact will have our church pray for him. This has been a week of bad news it seems, with a friend from Oregon  losing her daughter to lupus. And Stan Cobb (an ex-owner who lived in Building Ten) being diagnosed with prostate cancer. Thanks for keeping us updated, and when you see Bill give him a huge aloha hug from us.


Aloha
Paul and Kath

Gee,

I just read your email to Bill, and we both appreciate your words very much. We are so fortunate to have you two in our lives.  We had a visit from the oncologist a few minutes ago, and we got encouraging news.  The kidney has
a cyst, and only a cyst. He believes the melanoma on his kidney is operable and can be totally removed.  We won't know any more for a few days, and he is going to have more tests done, especially for the palsy, so I will let you know more when we know more.

I can breathe again.
Billie

Subject: Re: Bill
Oh Billie, we are so sorry to hear this news.  We love you guys and are so sorry you are going thru this.  We fully understand if you can't call.  Let us know what the oncologist says.  We're sending positive thoughts your way. 

Joe and Gee


9-30-2010

Dear Joe and Gee,

Bill is feeling much better, although his swallow is still not all there.  We saw his oncologist this afternoon, and he does not have any evidence of cancer in his thyroid.  So, we just have to see the surgeon and set a date for the surgery to remove part of his liver.  Best news we've had in a while.  We love knowing that you are there for us.
              
Love,
Bill and Billie

10-6-2010

I'm sending this as a mass email, so there are no personal notes here.  We have all kinds of things to do today, but I want to keep you informed.  We went to see Dr. Galanopolous, who is a surgical oncologist, yesterday. We liked him right away, even before he told us that he believes he will be able to get all the cancer.  Of course, he won't know for sure until he actually sees inside the liver.  There will be a few tests over the next couple of weeks, so the surgery will be scheduled for the end of this month or the beginning of next month.  Bill will be in the hospital for 3 to 5 days and his recovery time will be about 6 weeks.  He's going to have a big ole scar so you won't be seeing him on the beach in a bikini ever again.  Oh well, that's a picture you probably would rather not see, anyway. 

We love to hear from everyone, but we know you have busy lives, so don't worry about answering this.  We are happy knowing that prayers are being said for him.

Love,
B & B


11-6-2010



Aloha,

Saw Pat & Leroy this AM on way to beach. Told them we would bring over sheets and comforter at same time. They were OK with that.

Sorry to hear that Bill isn't doing well with the meds. I can fully understand your dilemma regarding Bill. Now, I'm gonna play mom and quote my mom: If you don't take care of yourself and then you get sick then you'll have two problems -his AND yours and then who's gonna take care of him? Keep rested, eat well, drink lots of water, (and a bourbon here and there), relax when you can. Don't feel guilty about leaving and take advantage of this time when you don't have to be there all the time because he has hospital staff to take care of him. AND let Kathy and others help! Don't try to do it all - reach out.

I'm glad that Tony was able to be there for the operation, but wish he could've stayed longer to help you out. Keep us informed.

XOXO

Gee

Dear Gee,
Hi, my phone ringer has been off so it wouldn't bother Bill, and I just found out that the vibrate feature wasn't on, so I missed a lot of calls.  I thought nobody liked me enough to call!  Anyway, I just listened to Joe's voice mail.  If you don't mind, why don't you wait until the comforter arrives to deliver the things to Pat.  Only one trip over there is easier.  I really don't care, though.  Do whatever you want to do.

Getting Out and About

Running a Marathon
Bill is being difficult.  He hates the pain meds 'cause they make him have weird dreams, but he needs more than OTC stuff.  After Tony left this morning, I spent the rest of the day at the hospital, and he was constantly up and down, wanting to get outa there, etc.  I worked with the nurse to get his medicine changed back from Dilaudid to morphine, which didn't give him hallucinations.  Finally, I couldn't stand it anymore, and I told him I thought he would get a better rest without me there.  He cried and said he was sorry to be such a bother.  How do you let someone you love know that, yes, you are being a bother.  I don't know whether to be a mom and tell him that he should just suck it up and concentrate on doing his exercises and trying to sleep?  Or to just hold him and let him get it out.  I pray that I'll go in tomorrow and find that the morphine with Benydryl helped him to get some sleep.

I'm home now and I'm going to fix some dinner and try to find a good old movie to watch.

Love,
Me

Stage  IV-  7 to 10% chance of five-year survival
Stage IV melanomas are very hard to cure, as they have already spread to distant lymph nodes or other areas of the body. Skin tumors or lymph node metastases causing symptoms can often be removed by surgery. Metastases in internal organs are sometimes removed, depending on how many are present, where they are located, and how likely they are to cause symptoms. Metastases that cause symptoms but cannot be removed surgically may be treated with radiation, immunotherapy, or chemotherapy.

Ipilimumab (Yervoy), a newer immunotherapy drug, has been shown to help some people with advanced melanoma live longer. It is just now coming into use, but some doctors may prefer it over other treatment options, such as chemotherapy or other types of immunotherapy.

The chemotherapy drugs in use at this time are of limited value in most people with stage IV melanoma. Dacarbazine (DTIC) and temozolomide (Temodar) are the ones most often used, either by themselves or combined with other drugs. Even when chemotherapy can shrink these cancers, the effect is often only temporary, with an average time of about 3 to 6 months before the cancer starts growing again. In rare cases they are effective for longer periods of time, however.

Immunotherapy using interferon or interleukin-2 can help a small number of patients with stage IV melanoma live longer. Higher doses of these drugs seem to be more effective, but they also have more severe side effects.

Some doctors recommend biochemotherapy: a combination of chemotherapy and either interleukin-2, interferon, or both. For example, some doctors use interferon with temozolomide. The 2 drugs combined cause more tumor shrinkage, which may make patients feel better, although the combination has not been shown to help patients live longer. Another drug combination uses low doses of interferon, interleukin-2, and temozolomide. Each seems to benefit some patients. Patients should carefully consider the possible benefits and side effects of any recommended treatment before starting.

Because stage IV melanoma is very hard to treat with current therapies, patients may want to think about taking part in a clinical trial. Clinical trials of new chemotherapy drugs, targeted drugs, new methods of immunotherapy such as vaccines, and combinations of different types of treatments may benefit some patients.

Even though the outlook for patients with stage IV melanoma tends to be poor overall, a small number of patients have responded very well to treatment or have survived for many years after diagnosis.

11-8-2010
Dear Monique and Brian,
  
Okay, things are back to "normal."  Bill had ups and downs while in the hospital.  He had an epidural for the surgery, which they left in after it.  That did a great job of controlling the pain, but his right leg was still numb 18 hours after surgery.  He couldn't move it, which meant that he couldn't get out of bed.  They changed that to morphine, which worked, except, he wouldn't push the button, so he was in pain. They changed it to something else, which made him have hallucinations whenever he closed his eyes, so he couldn't sleep.  They put him back on morphine, but made it automatic, so he wasn't in control of the dose.  Saturday night, he was finally able to get a good sleep on morphine and Benadryl.

I spent the first night with him, on a cot that I think they picked up at the thrift store after someone had used it for 47 years.  It was so lumpy that I got ten blankets to put on it, and I still had bruises in the morning from the springs.  Anyway, Tony and Bill made me come home after that so I could get some sleep. Did you know that hospitals are not quiet places?  There are dings, clunks and constant talking from nurses and visitors.  They don't even ask people to keep the noise down. Bill heard one patient come out of his room and ask the nurses if there was a block party going on, because it was so noisy. 

Keeping Busy
He was so glad to be able to come home yesterday.  He can't get really comfortable, so he walks around the house, sampling all the chairs, but at least he is here walking around.  I thought you'd like to see a picture of him from Saturday. 

Love,
Me

11-20-2010

Dear Craig and Jackie,

Bill continues to improve, feeling good for a couple of days, then feeling just okay.  It's two weeks and three days post-surgery.  His surgical oncologist said he is very pleased with his progress, and he pronounced him cancer free.  Let's hope he stays that way.  There will probably be some chemo coming up, but for now, he can concentrate on getting better.  The only thing the doctor failed to do was tell us that he would have to modify his diet.  Luckily a couple of friends did let us know, 'cause my brain was not engaged, so I didn't even think that he might not be able to eat normally.  I believe you were one of the ones who gave us some advice on that.  I wish we had heeded you.  Last Tuesday, he felt so well, that he had a burrito for lunch and a small piece of pizza for dinner followed by a doughnut for dessert.  Duh!!  He had a terrible night, and we learned our lesson.  We should both benefit from a different way of eating.  We've tossed or given away most of the things he can't eat.  Unfortunately, that means no Christmas baking will be done at our house.  Happy Thanksgiving to you, and we do hope to see you during the holidays if you happen to be down this way.  It doesn't look as if we will be able to drop in on you, at least for a couple of months, as my work schedule during the holidays is crazy.

 Monday, December 28, 2009, 5:57 PM

Letter to Scott

We had quite the adrenalin rush this morning.  We were on the way to Westwood, Calif, about
20 miles west of Susanville, just driving along at about 30, going down an icy hill, minding our own business, when
suddenly a pick-up truck came up the hill from the other direction.  It skidded toward us and then corrected,
but he lost control completely and went over the side. If he hadn't corrected, he would have slammed right into
us.  It took me a long time to come to a stop (great ABS by the way), (and Dad was already on the phone to 911),
but when I did, I backed up to across from where he was and got out of the car, only to slide on the ice.  I
quickly pulled on my boots, and started across when I saw the man climbing up the embankment.  From the condition of his truck, it is amazing that he survived, let alone got himself out.  We made him get in our car and gave him tissues and baby wipes to help with the bleeding of his
head.  While we waited, I called his wife to let her know what had happened.  After a few minutes, he wanted to go over to see his truck, so I U-turned to park next to it, and he got out.  It was pretty amazing the way he landed between a group of trees.  If he had hit one of them, he probably would have been much worse.  He was worried about his computer and his master's thesis, so he went down to see if he could get them.  When he turned the computer on, it worked fine, so he was pretty happy about that, but not too pleased about his destroyed truck.  The police and ambulance arrived and we gave our statement, then went on our way to our job.